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Our Voices Matter. Share Your Journey. Stand with Families Facing MLD.

About Us

Championing Voices. Advancing MLD Awareness.

"We are a global network of patient advocates and families dedicated to supporting those impacted by metachromatic leukodystrophy (MLD). We are here to connect you with resources, information, support, and others dealing with MLD. 

MLD

MLD Voices Logo Tree

Voices

  • Join the movement to raise awareness, drive research, and support MLD families everywhere.

  • Stay informed on the latest legislation and healthcare policies impacting MLD diagnosis, treatment, and newborn screening. 

  • Your voice matters. Share your family’s journey with MLD and help others feel seen, heard, and connected.

Advocacy

Information on the various ways in which you can contribute to the work of MLD Voices

MLD Voices | Photo Gallery from MLD on the Hill, May 5th - 8th, 2025

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Are you a newly diagnosed family? Contact us for more information and resources about MLD.
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